Sometimes Lyme is hard.

Sometimes Lyme is hard.

Sometimes you wake up in the morning and your tongue is so swollen that you can't close your mouth around it. For no reason. No reason other than the fact that you have Lyme. Sometimes your clothes hurt. Sometimes everything hurts. Sometimes you walk across the room and the carpet hurts the bottom of your feet like it's little tiny needles piercing your skin with each step. Sometimes the sheets on your bed feel like sandpaper. So you can't escape the carpet there either. Sometimes the air even hurts as it hits your face. So going outside isn't a choice. Sometimes there's no escape from your own body. Sometimes all you need is a hug. But that will hurt too. So you don't even ask.

Sometimes you're scared. You're scared of how you're feeling. You're scared that you won't ever feel okay again. You're scared that you don't actually remember what it feels like to feel okay.

Sometimes you sleep a lot. Sometimes it's all you can do. Sometimes you wake up, move to another place and then go back to sleep. Sometimes that's all you can manage in a day. And sometimes you have to let that be okay.

Sometimes you can't talk to your friends. Sometimes it's easier to just be quiet than it is to explain how you're feeling. Sometimes you write a text message ten times and delete it every time instead of sending it because you don't want to be a burden. Sometimes you feel like a burden anyway. Sometimes means always in this case.

Sometimes you can't put the words together to write your blog. Sometimes you try anyway. Sometimes you get something like this. Sometimes your brain is a mess.

Sometimes Lyme is hard.